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A.A. EVSEEVA, S.L. KUZNETSOV
Penza State University
Penza Medical Institute of Postgraduate Education
Methods of study of life quality in ophtalmological patients
This article reviews the literature on methods for the study of life quality. Research in life quality is most relevant in modern medicine. Life quality assessment tools are general and specific questionnaires. Over the past few years about two dozens of different special questionnaires have been proposed for use in ophthalmic patients, but many of the structure and content of special ophthalmologic questionnaires remain unresolved.
Keywords: life quality, questionnaire.
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1. ., .. . ., -, 2002. 314 .
2. Rubin G.S., Bandeen Roche K., Huang G.H. et al. The association of multiple visual impairments with self-reported visual disability: SEE project // Invest. Ophthalmol. Vis. Sci. 2001. Vol. 42, 1. P. 64-72.
3. .., .., .. // . 2007. 9-10. . 25-31.
4. Sherwood M.B., Garcia Siekavizza A., Meltzer M.I. et al. Glaucoma's impact on quality of life and its relation to clinical indicators. A pilot study [see comments] // Ophthalmology. 1998. Vol. 105, 3. P. 561-566.
5. Ware J.E., Kosinski M., Keller S.D. SF-36 Physical and Mental Health Summary Scales: A User's Manual The Health Institute, New England Medical Center. Boston, Mass, 1994.
6. .., .. 1- // . 2003. 3.
7. .. , // . 2010. 1. . 36-38.
8. Kosmidis P. Quality of life as a new end point // Chest. 1996. Vol. 109 (Suppl. 5). P. 110-121.
9. .., .. : // . IV . ., 2011. . 97-105.
10. Yelin E. Measuring Functional Capacity of Persons with Disabilities in Light of Emerging Demands in the Workplace // NAP. 1999.
11. Jenkinson . Short form 36 (SF-36) health survey questionnaire: normative data for adults of working age / C. Jenkinson, A. Coulter, L. Wright // BMJ. 1993. Vol. 306. P. 1437-1440.
12. Linder M., Chang T.S., Scott I.U. et al. Validity of the visual function index (VF14) in patients with retinal disease // Arch. Ophthalmol. 1999. Vol. 117, 12. P. 1611-1616.
13. Whitehouse R. Measure of outcome in current clinical trials of eyecare // NIH. 2001.
14. Ware J.E., Snow K.K., Kosinski M. et al. Sf-36 Health Survey. Manuel and Interpretation Guide, Lincoln, R.I.: Quality Metric Incorporated, 2000. 150.
15. .., .., .. . // . . ». 2003. 10. . 30-33.
16. .., .., .., - .. // . , 1995. . 27-28.
17. .., .., .. . ( ) : . , 1998. 53 .
18. .., .. : . . , 2011. 22 .
19. Stewart A.L. Measuring functioning and well-being: he medical outcomes study approach. Duke University Press / A.L. Stewart, J.E. Ware. Durham, 1992. P. 291-303.
20. .., .. // , 9-: . . ., 2010. . 73.
21. .., .., .. . // . 2011. 14 (133). . 156-157.
22. .., .. // - -2011: . . .-. . . . ., 2011. . 163-167.
23. .., .. NEI VFQ-25 // . . 2010. . III, 1. . 26-30.
24. Hart P.M., Chakravarthy U., Stevenson M.R. Questionnaire-based survey on the importance of quality of life measures in ophthalmic practice // Eye. 1998. Vol. 12, 1. P. 124-126.
25. Mihaila V. General Population Norms for Romania using the Short Form 36 Health Survey (SF-36) / V. Mihaila, D. Enachescu, . Davila // QL News Letter. 2001. Vol. 26. P. 17-18.
26. Boisjoly H., Gresset J., Fontaine N. et al. The VF14 index of functional visual impairment in candidates for a corneal graft // Am. J. Ophthalmol. 1999. Vol. 128, 1. P. 38-44.
27. Brown G.C., Brown M.M., Sharma S. Difference between ophthalmologists and patients perceptions of quality of life associated with agerelated macular degeneration // Can. J. Ophthalmol. 2000. Vol. 35, 3. P. 127-133.
28. McClure M.E., Hart P.M., Jackson A.J. et al. Macular degeneration: do conventional measurements of impaired visual function equate with visual disability // Br. J. Ophthalmol. 2000. Vol. 84. P. 244250.
29. .., .. // . ., 2003. 2 (28). . 161-162.
30. .. // / .., .., .. , 2009. . 73-81.
31. Alonso J., Espallargues M., Andersen T.F. et al. International applicability of the VF14. An index of visual function in patients with cataracts // Ophthalmology. 1997. Vol. 104, 5. P. 799-807.